Hi, my name is Amanda Ishmael, I’m 27 years old and I have Crohn’s Disease. I was originally diagnosed with Ulcerative Colitis in 2008, but that diagnosis changes to Crohn’s disease around 2013. I have had a few surgeries now:
subtotal colectomy with ileostomy – May 5th, 2011
ileo-rectal anastomosis (reversal surgery) – May 27th, 2015
ileo-rectal perforation with ileostomy – September 12th, 2017
I have tried lialda, which worked until my colectomy. I have tried Remicade, which I had only 2 infusions of and failed right before my colectomy. I was on humira for a few years and was in complete remission up until my perforation, which caused my doctors to want to change my biologic class. And currently I have had the loading dose of Stelara and am due for my second dose soon. I’m hoping it works so I can be reversed again!
Living with Crohn’s disease has its ups and downs, in a lot of ways, especially when I’m in remission, I’m just like anyone else. I practice martial arts, I own and ride a horse (my pride and joy), I ride a motorcycle, I like to go on hikes with my husband Cody and our dog Niko. Most times people don’t even realize the war that is constantly raging in my body! Despite all of these good things, I also suffer from chronic pain, super sensitive skin, anxiety, insomnia, and depression. We all have to go through this thing called life so why not make the best of it right?!